** Trigger warning - upsetting content **
The Times: "NHS to review ME services after death of Maeve Boothby O’Neill"
Andrew Gwynne and NICE have committed to improve patient outcomes after the landmark inquest into the tragic death of Maeve Boothby O'Neill.
The NHS is to carry out an assessment of ME services across England and NICE will be reviewing its guidance on feeding support for people with severe ME.
Maeve's father, Sean O'Neill, recognised the positive aspect of these public bodies listening to the Coroner's report and responding to findings.
However, Sean also expressed his disappointment in the responses, stating a "lack of substance" and concerns that there is no sign anything will be done to solve the "non-existent" care provision for people with severe ME, within the NHS.
Sean also said:
"And it is upsetting to hear that the Department of Health’s delivery plan on ME appears to have been delayed again until March 2025 — almost three years after work on it began when Sajid Javid was health secretary.”
Speaking on the Delivery Plan, our Chief Executive, Sonya, said:
"We are really disappointed to hear of yet another delay to the Delivery Plan, particularly when we have been assured multiple times recently of its coming publication during this winter. It is not good enough. We hope that this may at least mean it will arrive with actions carrying a greater impact for people affected by ME."
You can read the full article (paywalled), here.
