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World ME Day 2025

12 May 2025

Changing the narrative around ME and getting the facts right

This World ME Day, we're supporting the World ME Alliance in challenging the six most common myths about ME, sharing the real facts that everyone should know.

The World ME Alliance have also updated their ME factsheet, which is also available in a number of different languages.

Help us rewrite the narrative by sharing the real facts people should know about ME!

World ME Day in the UK: a joint statement

We have signed a joint statement, organised by the #ThereForME campaign, addressed to the UK Government calling for the Delivery Plan on ME/CFS to be backed with the resources it needs.

The statement has been signed by 27 different organisations, highlighting the urgent need for action.

A proposal for an ME/CFS, Long Covid, and Post-Infectious Disease research platform

We are also continuing our call for support surrounding our new campaign, launched by Action for ME, ME Research UK and ME Association based on the work of a group of academics, practitioners, clinicians, charity representatives and people with lived experience of ME who have been working together to input to the cross-government Delivery Plan on ME/CFS.

We have worked together to establish a proposal for a national ME/CFS research consortium in line with UKRI’s 5-year strategic themes and 4 of the 5 NIHR Key Initiatives. 

It would comprise five hubs, funded over 5-years, coordinated by a single centre whose remit is to work in partnership with patients and stakeholders to develop and promote innovative solutions to building research capacity for patient benefit. 

Click here to read more about the campaign, including the full proposal, on the ME/CFS Priority Setting Partnership website.

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