What we do: our vision, mission and values
Our vision is a world without M.E.
Our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and ultimately a cure.
Our 2022 - 2027 strategy, Shaping our future together, has been developed in partnership with children, young people and adults with M.E., their loved ones and carers, and others who share our values and ambitions. This has included learning from the services and support we provide, our surveys and consultations, workshops and discussion groups, and from wider engagement with the M.E. community.
Our strategy sets out four ambitious outcomes which we believe will help us end the decades of ignorance, injustice and neglect faced by people with M.E. Underpinning each one is our focus on ensuring we reach underserved communities, so they have better access to healthcare, information and services.
- The lives of people with M.E. are improved by effective access to the information, support and advocacy they need.
- The health of people with M.E. is improved via access to our holistic Healthcare Services, and the National Institute for Health and Care Excellence (NICE) guideline for M.E. is being effectively implemented across NHS services.
- Increased funding for high-quality research by more researchers leads to effective treatments for M.E.
- The UK Government establishes and leads a national strategy for M.E. UPDATE Action for M.E. welcomed the Department of Health and Social Care’s pioneering statement on M.E. on the first ever World M.E. Day on 12 May 2022. It's the first time that Government has made an explicit and dedicated statement about the condition.
You can read about the difference our work makes to people living with M.E. in our annual report and accounts 2021 to 2022.
Shared values are held with high regard in our organisation and reflect how we seek to work with our supporters, partners and other key stakeholders. They reflect the attitudes, beliefs and behaviour that we value in each other and underpin our whole approach and culture.
- Empathy: the majority of our Trustees have direct experience of M.E. themselves. Their strategic leadership will set the parameters that reflect this intrinsic empathy and instil this value into all staff and volunteers who do not have such direct experience.
- Clarity: we will be clear and transparent about what we’re doing, why we’re doing it and how we’re doing it.
- Courage: we will have the moral courage to campaign openly on behalf of people affected by M.E. and to state our evidence-based policies regardless of how unpopular this may make us.
- Collaboration: we will work collaboratively and inclusively with others to create capacity and achieve the level of transformation needed.