The APPG on ME will be meeting on 2nd September from 1pm-2pm in Room T, Portcullis House to discuss the initial findings of Action for ME’s Big Survey and explore what action members can take to redress the issues identified. With over 5,000 respondents with either ME and/or Long COVID the Survey provides a powerful report on the experiences of children and adults with ME/LC and their families.
The 2025 Big Survey is a collaboration between Action for ME and the Discovery Research Platform for Medical Humanities at the Institute for Medical Humanities (IMH), Durham University. Postdoctoral researcher, Dr Katherine Cheston, is working with Action for ME to help support the survey's development, data collection, and subsequent analysis.
APPG members will consider the findings and use them to shape actions for the forthcoming year. The APPG will also hold an Extraordinary General Meeting (EGM) to appoint a new Vice Chair as Jo Platt MP has been appointed as a Parliamentary Private Secretary (PPS) to the Prime Minister, Andy Burnham in July.
You can invite your MP to attend: https://members.parliament.uk/members/commons
We also have a template letter that you can download and send to your MP.
