On 3-4 March, Action for ME hosted a research event at Windsor Castle that bought together 27 international experts from different sectors. The event was made possible by a private donor and held in partnership with St George’s House, Windsor. Action for ME’s CEO, Sonya, is a fellow of the House.
You can read the full summary of the Windsor event here, which includes next steps and a list of attendees.
Opportunities for collaboration in ME research remain very limited and this event created a rare space for open discussion at a key moment: DecodeME is nearing completion and long Covid research is growing. Yet people with ME are still waiting for real progress. Urgent action is needed to respond to the growing number of people affected.
Discussions focussed on genetics, diagnosis and developing treatments, reflecting our work in the Genetics Centre of Excellence and new findings from the DecodeME and LOCOME studies.
The event enabled new connections and partnerships to be formed, and built a shared commitment to improving the quality and impact of research for ME and long Covid.
