A small organisation that regularly punches above its weight.
With the voices and experiences of people with ME at the heart of everything we do, we are working to create real change on the scale so urgently needed at a local, national and international level.
Our strategy, Shaping our future together, has been developed in partnership with children, young people and adults with ME, their loved ones and carers, and others who share our values and ambitions.
It sets out our ambitious goals which we believe will help us ensure that people affected by ME receive the respect, treatment, and care they deserve.
We are currently underrepresented by men, non-binary and black and minority ethnic people in our team and would particularly welcome applicants from these groups.
Action for ME supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.
*This page has been created to inform people about our organisation's potential working and volunteering opportunities. We do not require the services of recruitment agencies regarding recruitment.
Responsible to: Fundraising Operations Manager
Salary: £24,645 - £26,275 FTE per annum (pro rata)
(£19,716 - £21,020 actual) Exact salary dependent on experience
Hours of work: Part time - 28 hours per week (0.8 FTE) . Exact days/times to be agreed upon appointment. We consider flexible working requests
Annual leave: 30 days with 8 additional Bank Holidays pro rata
Location: This role is hybrid - split between home working and our Bristol office. You will be required to work a minimum of 50% of your hours from the office each week.
Closing date: 19th January 2026
This role will underpin the operation of our fundraising and membership programmes, with a mixture of public facing interactions and focused operational, database work.
Our long-standing membership scheme is an integral part of our fundraising at Action for ME, and we are fortunate to have a generous membership base of over 3,000 loyal supporters. You will be the main point of contact for our members, ensuring they feel valued and connected to our work, as well as supporting efforts to increase our current membership.
You will also be responsible for the smooth running of crucial operational processes for our membership, trading and individual giving income streams, both during fundraising campaigns and day to day. With a commitment to continuous improvement of these systems, you will help us to increase the efficiency and quality of our stewardship, retain our donors and bring in new supporters.
More information about the role, including the application pack and how to apply.
Head of Advocacy and Communications for the World ME Alliance
The World ME Alliance is recruiting a new Head of Advocacy and Communications.
Responsible to: CEO of Action for ME
Responsible for: volunteers and interns
Salary: £33,197 FTE, £13,279 pro rata
Hours of work: 14 hours per week (0.4 FTE) at flexible times
Location: UK home-based, remote
Closing date: 10 November 2025, 12pm PT, 8pm BST
The World ME Alliance unites organisations across the globe to drive change for the millions living with ME, one of the most overlooked and marginalised conditions in global health.
This is an opportunity to work with extraordinary people and organisations worldwide -from patient advocates to international health leaders - to amplify the collective voice of those living with ME and influence global policy.
The World ME Alliance are seeking a Head of Advocacy and Communications to lead and deliver our global advocacy, policy, and communications work. It’s a hands-on and strategic role, shaping international campaigns like World ME Day, producing compelling content and graphics, and building meaningful collaboration across cultures.
If you’re a strategic thinker who loves rolling up your sleeves - creating compelling content, leading campaigns, and turning ideas into action - this is your chance to make a global impact.
For more information about the role, including the application pack and how to apply, visit the World ME Alliance website.
Much of the work we do here at Action for ME is made possible by our fantastic volunteers.
Some have been with us for many years, while others gain valuable work experience over shorter periods.
Supporting our administrative, communications, marketing, fundraising, and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.
Peer Moderator for our Young People's Forum
We are looking for a volunteer Peer Moderator for Action for ME’s Young People’s Forum.
Our Young People’s Forum helps reduce the isolation so often experienced by young people with ME.
Volunteering for Action for ME is a great way to gain experience and skills. You’ll be helping other young people to escape the isolation so often experienced by young people with ME, by connecting them with others.
If you have lived experience of ME or another energy-limiting chronic illness, and are interested in training to be a Peer Moderator, please email: 18andunder@actionfome.org.uk
Please note that this role is for young people.
In spring 2024, thanks to funding from the National Lottery Community Fund, we launched a free Counselling service for children and young people with ME/CFS.
Our brilliant Young People's Steering Group ensures that young people with ME/CFS are at the heart of how we develop, deliver and improve this vital service, along with our other services for those aged 18 and under.
The Steering Group help decide how and where we promote our services and measure the difference these services make.
We meet online every two months, with support from staff, and are really flexible to make sure meetings work for everyone.
Some Steering Group volunteers, as an optional extra, get involved in co-faciliating monthly Breaking Isolation workshops.
So if you're aged between 13 and 18, and would like to meet new people with the chance to make a real difference to your peers - as well as gaining valuable skills and experience - we'd love to hear from you.
Please download our Young People's Steering Group and Workshop information pack to find out more, including how to apply (don't worry, the process is simple and informal).
Recruitment for the Steering Group is ongoing so there's no deadline to get in touch.
If you have any questions or want to talk about this volunteering opportunity, please email Keely, our Family Support Officer.
Thank you.
Some key services for our Young People's Community are led by young volunteers (aged 18 and under) living with ME.
Some contribute to our community forum, helping users feel less isolated and more confident about making connections.
Others write to those children and young people severely affected by ME, without the expectation of a reply. Interested?
Get in touch to find out more.
A range of medical, research, and professional advisors provide an invaluable network of support for Action for ME on a pro bono basis.
All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with ME they help us support.
We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by ME.
If this sounds like something you're interested in, please get in touch.
