A small organisation that regularly punches above its weight.
With the voices and experiences of people with ME at the heart of everything we do, we are working to create real change on the scale so urgently needed at a local, national and international level.
Our strategy, Shaping our future together, has been developed in partnership with children, young people and adults with ME, their loved ones and carers, and others who share our values and ambitions.
It sets out our ambitious goals which we believe will help us ensure that people affected by ME receive the respect, treatment, and care they deserve.
We are currently underrepresented by men, non-binary and black and minority ethnic people in our team and would particularly welcome applicants from these groups.
Action for ME supports the Women in Business Charter: Bristol. The Charter recognises and supports the work of Bristol Businesses to create workplaces that are gender equal.
*This page has been created to inform people about our organisation's potential working and volunteering opportunities. We do not require the services of recruitment agencies regarding recruitment.
Responsible to: Director of Operations
Salary: £40,000 - £45,000 pro rate (dependent on skills and experience), plus access to pension scheme with a 4% employer contribution.
Hours of work: Part-time, 14 hours per week
Location: Home or office (Bristol), or hybrid. Face-to-face meetings will be required, including travel to meetings.
Annual leave: 30 days + 8 bank holidays per year (pro rata)
Closing date: 09.00, Monday 22 June 2026
Action for ME are the only UK charity providing a range Healthcare Services to people of all ages affected by ME.
We are seeking a dynamic, strategic, and highly organised individual with either registered healthcare status or an experienced commissioner of healthcare services and a passion for supporting people with long-term health conditions like ME.
As Clinical Lead, you will play a pivotal role in the delivery and development of our Healthcare Services. As our CQC Registered Manager, you will play a critical role in supporting the team and assuring effective and safe services for people with ME of all ages and their families.
Reporting to the Director of Operations, you will also play a pivotal role in developing our services, drive performance and optimise processes, and enhance service delivery to take action with impact to better support individuals living with ME.
Read the full recruitment pack and apply via our recruitment website page; Clinical Lead (Healthcare Services) | Action for ME | CharityJob
Responsible to: Clinical Lead
Salary: Self-employed, per consultation/hourly rate £106 per hour for consultation time / £88 per hour for administrative duties
Hours of work: Part-time, flexible hours as agreed
Location: Remote/home-based
Contract Type: Part-Time, minimum of 1 day per week @ 7 hours
Closing date: 09.00, Monday 22 June 2026
We are seeking a dedicated and compassionate Medical Doctor to join our non-prescribing ME/CFS care team, who shares our commitment to high-quality, patient-centred care in line with the latest NICE guideline.
This is a rare opportunity to work with the UK’s only charity providing specialist healthcare and support for people with ME/CFS. You’ll deliver holistic, non‑prescribing care through remote consultations, develop personalised care plans, and collaborate with a passionate multidisciplinary team — all while advocating for a community that urgently needs expert support.
To find out more about the role and how to apply, please read the role's recruitment pack.
Much of the work we do here at Action for ME is made possible by our fantastic volunteers.
Some have been with us for many years, while others gain valuable work experience over shorter periods.
Supporting our administrative, communications, marketing, fundraising, and support work, some of our volunteers work with us in our Bristol office, while others make their essential contribution from home.
We have two exciting opportunities for committed individuals to join our experienced Board of Trustees – a Safeguarding Lead Trustee and Chair, Services Sub-Committee.
Action for ME is the only UK charity providing support, including healthcare, to people of all ages affected by ME, while taking action to secure change for the future.
If you have an understanding of ME and its impact, and want to have a key role in supporting children and adults with ME while working to secure change for the future, joining our Board of Trustees could be for you!
As Safeguarding Lead Trustee, you will champion safeguarding at Action for ME, and work closely with our CEO and Designated Safeguarding Lead to ensure the organisations strategic plans reflect safeguarding legislation.
As Chair, Services Sub-Committee you will provide insight, oversight and foresight for our support and healthcare services and work collaboratively with the Director, Operations, Head of Services and Clinical Lead to ensure safe and effective services.
Download the application pack for further information about these roles and how to apply.
We are looking for a volunteer Peer Moderator for Action for ME’s Young People’s Forum.
Our Young People’s Forum helps reduce the isolation so often experienced by young people with ME.
Volunteering for Action for ME is a great way to gain experience and skills. You’ll be helping other young people to escape the isolation so often experienced by young people with ME, by connecting them with others.
If you have lived experience of ME or another energy-limiting chronic illness, and are interested in training to be a Peer Moderator, please email: 18andunder@actionfome.org.uk
Please note that this role is for young people.
In spring 2024, thanks to funding from the National Lottery Community Fund, we launched a free Counselling service for children and young people with ME/CFS.
Our brilliant Young People's Steering Group ensures that young people with ME/CFS are at the heart of how we develop, deliver and improve this vital service, along with our other services for those aged 18 and under.
The Steering Group help decide how and where we promote our services and measure the difference these services make.
We meet online every two months, with support from staff, and are really flexible to make sure meetings work for everyone.
Some Steering Group volunteers, as an optional extra, get involved in co-faciliating monthly Breaking Isolation workshops.
So if you're aged between 13 and 18, and would like to meet new people with the chance to make a real difference to your peers - as well as gaining valuable skills and experience - we'd love to hear from you.
Please download our Young People's Steering Group and Workshop information pack to find out more, including how to apply (don't worry, the process is simple and informal).
Recruitment for the Steering Group is ongoing so there's no deadline to get in touch.
If you have any questions or want to talk about this volunteering opportunity, please email Keely, our Family Support Officer.
Thank you.
Some key services for our Young People's Community are led by young volunteers (aged 18 and under) living with ME.
Some contribute to our community forum, helping users feel less isolated and more confident about making connections.
Others write to those children and young people severely affected by ME, without the expectation of a reply. Interested?
Get in touch to find out more.
A range of medical, research, and professional advisors provide an invaluable network of support for Action for ME on a pro bono basis.
All have one thing in common: they are hugely valued not just by our staff and Trustees, but also the people with ME they help us support.
We are immeasurably grateful value for the time and energy they spend enriching our work, and helping us reach even more people affected by ME.
If this sounds like something you're interested in, please get in touch.
