"It was just really nice talking to someone who understood what it's like living with a debilitating health condition without me having to explain myself or being dismissed." - Information & Support user
Our friendly Information & Support service supports people with ME and their carers to address the challenges presented by the illness. We also help professionals support their clients with ME.
We offer contact by phone and email to:
If you are seeking specialist legal or employment advice; or mental health support, we can signpost to appropriate organisations.
You can call the Information & Support service on 0117 927 9551 (choose option one) to request a call-back, between 10.30am and 3pm, Monday to Thursday (excluding bank holidays).
Please leave your name, number and a brief description of how we can help.
If you give us an idea of when it's best to reach you, we will do our best to call then.
After our call, we can send an email summarising what we talked about, with links to any resources/sources of support.
Or you can email us.
We get back to everyone who leaves us a request for a call-back or sends an email, within five working days (Monday to Friday excluding bank holidays) and often much sooner.
Why don't we answer calls "live"? Our Information & Support service is very busy. Putting this call-back system in place is the best way to ensure we can still offer a high-quality service within the limits of our current capacity and resources.
Calls from Isle of Man, Republic of Ireland and other non-UK numbers Our phone system prevents us from making calls back to non-UK numbers.
We can share information and support on all aspects of living with ME, for adults, parents and children and young people, along with carers, employers, health professionals, social workers and teachers.
We offer key information with the aim of supporting you to make informed decisions about what is right for you.
While our Information and Support service team does not recommend any specific treatments or management approaches, our Healthcare Services team works with individual patients to offer personalised advice, care and support.
You can download our useful resources for free online, or we can send them to you by post or email, on topics including but not limited to:
