Join our webinar: Updates on DecodeME and Sequence ME & Long Covid 

13 November 2026

Tuesday 1 December 2026, 2–3pm | Online

Join Action for ME and researchers from the University of Edinburgh for a special webinar exploring the latest progress in two major research projects investigating the biological causes of ME and Long Covid. 

DecodeME, the world's largest genetic study of ME, identified eight regions of the genome associated with the condition, providing important new evidence about its biological basis. 

Building on these findings, Sequence ME & Long Covid is using more advanced long-read whole-genome sequencing technology to investigate the underlying mechanisms of both conditions, with the aim of identifying potential pathways towards better diagnostics and treatments. 

The webinar will feature Professor Chris Ponting from the University of Edinburgh and Sonya Chowdhury, Chief Executive of Action for ME, who will share updates on both studies, including progress to date and the next steps for the research. There will also be time for your questions. 

Whether you participated in DecodeME, have been following the development of Sequence ME & Long Covid, a funder or considering donating or are an organisation interested in ME/CFS and Long Covid research, or you simply want to learn more about this groundbreaking research, we hope you'll join us. 

Webinar details 

  • Date: Tuesday 1 December 2026 
  • Time: 2–3pm 
  • Location: Online 

Register for the webinar here.

Can't make it? 

If you're unable to join us live, the webinar will be available to watch afterwards on our YouTube channel. 

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