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Latest research: M.E. cellular bioenergetics impaired

November 06, 2017

Research co-funded by Action for M.E., showing that cellular bioenergetics is impaired in patients with M.E., has been published in the journal PlosOne.Also co-funded by the Medical…
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​Research round-up: defining M.E., recovery and more

October 24, 2017

Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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Call for biomedical PhD research proposals now open

October 10, 2017

Action for M.E. is inviting PhD proposals for high-quality biomedical research pilot projects that will address the biology of Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome…
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M.E. costs UK economy over £3 billion

September 28, 2017

M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today.The figures account for healthcare costs, disability-related welfare payments,…
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SMILE Trial results published: Action for M.E. comment

September 20, 2017

Results of a trial published today show that a small cohort of young people with mild or moderate M.E. report improvement in their symptoms after undergoing the Lightning Process in…
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Researchers from the UK, US and beyond at #CMRC2017

September 13, 2017

"Any physician will tell you that you learn a lot more from talking to patients than you do from reading any kind of text book."These are the words of leading US M.E. researcher Dr…
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Research conference registration closing soon

August 31, 2017

If you're hoping to attend the 2017 UK CFS/M.E. Research Collaborative (CMRC) conference featuring Prof Jose Montoya on Wednesday 13 and Thursday 14 September, it's worth bearing in…
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​Latest research: hunting for biomarkers

August 25, 2017

Supporting you to stay informed about M.E. research, we publish regular round-ups by Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
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CMRC conference update: filming presentations

August 16, 2017

Experts in neurovirology and orthostatic intolerance take the lead at the fourth annual UK CFS/ME Research Collaborative (CMRC) conference next month, which will be filmed by Action…
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Research symposium to stream live this Saturday

August 07, 2017

A research symposium that includes the latest research by Stanford Genome Technology Center Director Ronald W. Davis will be livestreamed on Saturday, August 12.The symposium, which…
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Blood biomarkers may help diagnose CFS

August 01, 2017

New research from Stanford University has found that blood biomarkers may help diagnose Chronic Fatigue Syndrome.The inflammation biomarkers could also give new clues to what causes…
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Attend both days of CMRC conference: register now

July 18, 2017

Following requests from people with M.E., this year’s CFS/ME Research Collaborative (CMRC) conference is now open to people with M.E., carers and M.E. advocates on both days.Taking…
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Action for M.E. comment on GETSET study in Lancet

June 23, 2017

Some people with M.E. report that using a guided self-help version of graded exercise therapy (GET) helps improve symptoms, says a study published yesterday in the Lancet.Two hundred…
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​Research round-up: faulty pain receptors and more

May 18, 2017

Each month, Action for M.E. volunteer and Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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​Our Board of Trustees on CBT, GET and PACE

May 16, 2017

In April, our Board of Trustees met to discuss Action for M.E.’s position on a range of key issues relating to our work.This includes a number of serious concerns raised by our supporters…
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PLOS ONE issues Expression of Concern on PACE

May 03, 2017

The journal PLOS ONE has issued an Expression of Concern about the PACE trial paper it published in 2012.“Several readers have raised concerns about some of the analyses reported in…
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Research round-up: potential biomarker for M.E.

April 11, 2017

A potential biomarker, and the effect of exercise on the brains and bodies of people with M.E., are the highlights of our monthly research round-up for April. Researched and written…
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Severely affected in MEGA are "absolutely essential"

March 30, 2017

The Scientific Team and the Patient Advisory Group for MEGA have confirmed that data will be collected from those most severely affected by M.E., preferably through home visits.The…
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December research news: biobank, CMRC report and more

December 21, 2016

Selected presentations from this year's UK CFS/M.E. Research Collaborative (CMRC) conference are now available to read in a draft overview - a full report is expected soon. The CMRC…
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Stop M.E. stealing lives: donate to our Research Appeal

December 05, 2016

It’s shocking that research funding for M.E. is still well below the level we see for other illnesses. It still feels as though some people do not see M.E. as a debilitating, serious…
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​New MEGA research website now live

November 30, 2016

A new website for the M.E./CFS Epidemiology and Genomics Alliance (MEGA) is now live, with lots of information about this potentially game-changing research project and the scientists…
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PhDs and postdoc M.E. research funding: apply now

November 23, 2016

Launching our new five-year strategy at our 2016 conference and AGM last week, we set out how we plan to improve the lives of people with M.E., inspire action at all levels, and invest…
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Why we are supporting the MEGA research project

November 22, 2016

In response to questions asked by our supporters and others affected by M.E., we would like to clarify our position on the M.E./CFS Epidemiology and Genomics Alliance (MEGA) research…
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Improve, inspire and invest: our strategy for change

November 18, 2016

Launching our new five-year strategy at our Collaborating for change conference today, Action for M.E. asks how we can work better together to improve the lives of people with M.E.…
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ME/CFS International Alliance protests Shorter lecture

November 09, 2016

Bringing together M.E. advocates and charity representatives from six countries, the M.E./CFS International Alliance has written jointly to the National Institutes of Health, protesting…
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New MEGA website to feature improved accessibility and engagement

November 03, 2016

The change.org site for the MEGA research project has been taken down while a new website dedicated to the project is being developed. This is following feedback that the Change.org…
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New FITNET trial announced for young people with M.E.

November 02, 2016

The University of Bristol has announced the launch of a new clinical trial, in which more than 700 children and young people with M.E. will take part. The trial will investigate whether FITNET-NHS…
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MEGA update: blogs by Profs Perry and Ponting

October 31, 2016

Prof Hugh Perry, Professor of Experimental Neuropathology, University of Southampton, and Chair of the MRC’s Neuroscience and Mental Health Board, has blogged and answered questions…
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Post-exertional malaise: our latest research round-up

October 19, 2016

Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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Clear need for M.E. research investment, says report

September 29, 2016

Research into M.E./CFS represents less than 1% of all active grants given by UK mainstream funding agencies, highlights a new report launched at today's UK CFS/M.E. Research Collaborative…
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MEGA research for M.E./CFS: pledge your support

September 28, 2016

Please add your voice to support a significant biomedical research project to investigate the biology of M.E.Launched at today's UK CFS/M.E. Research Collaborative conference, the M.E./CFS…
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Third CMRC conference starts tomorrow

September 27, 2016

Tomorrow marks the first day of the third annual CMRC conference, which will be held on Wednesday 28 and Thursday 29 September 2016 at the Novotel, Newcastle Airport.Our plan is to…
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Preliminary analysis of newly released PACE data

September 23, 2016

Working with statistics professors from the University of California and Columbia University, M.E. patient Alem Matthees has published his preliminary analysis of the anonymised PACE…
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PACE data released to M.E. patient via FOI request

September 13, 2016

Queen Mary University of London (QMUL) announced on Friday that it has released anonymised data from the PACE trial to a patient with M.E. who requested it under the Freedom of Information…
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​New research: distinct biological differences in M.E.

September 02, 2016

Findings of research facilitated by the Open Medicine Foundation could be set to rock the world of medicine, writes Action for M.E. Volunteer Pharmacist Emily Beardall.Published online…
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Professional versus peer support: August research round-up

August 31, 2016

Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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Neurological Alliance publishes report on primary care

August 15, 2016

The Neurological Alliance, of which Action for M.E. is a member, have published their report Neurology and primary care: Improving the transition from primary care for people with neurological…
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New theory on neuro: our latest research round-up

August 03, 2016

Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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Government encourages more high-quality M.E. research proposals

July 20, 2016

The Government has responded to a petition asking it to fund more research into M.E./CFS by saying that research into the illness is currently a priority area for the Medical Research…
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Our funded research: latest muscle dysfunction and immune findings

July 12, 2016

Two Newcastle University research studies funded by Action for M.E. have concluded, having investigated immune responses and muscle dysfunction in people with M.E.Each research team…
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June Research Round-up

June 27, 2016

Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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Prof Ron Davis' severe M.E. study: initial findings presented

June 08, 2016

Prof Ron Davis presented new findings from his big data study on severe M.E. at last week’s Invest in ME research conference, reports #MEAction.“Davis’s preliminary data show serious…
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Brain changes and killer cells: research round-up

June 01, 2016

Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
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M.E. highlighted at new Phenome Centre launch event

May 23, 2016

M.E. was highlighted as a field that could benefit from world-class facilities as the University of Birmingham’s new £8million Phenome Centre at its official launch today.Clare Ogden,…
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MEGA M.E. research project: first of its kind in UK

May 16, 2016

A new alliance of researchers, the M.E./CFS Epidemiology and Genomics Alliance (MEGA), has come together to advance M.E. research.Last year's UK CFS/M.E. Research Collaborative (CMRC)…
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​Latest research projects announced, plus new funding available

May 13, 2016

Action for M.E. is delighted to announce that we are funding two new research studies totalling £42,000, made possible by donations to our Clare Francis Research Fund and match-funding…
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UK M.E./CFS Biobank launches today, M.E. Awareness Day

May 12, 2016

Action for M.E.’s Head of Communications and Policy, Clare Ogden, will join scientists, doctors and patients at the London School of Hygiene and Tropical Medicine (LSHTM) this evening…
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Our letter in support of PACE trial data release

February 21, 2016

Our Chair of the Board of Trustees, Alan Cook, has written to the Records and Information Compliance Manager at Queen Mary University of London to support the release of data related…
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Sharing research data: Board states our position

February 12, 2016

Yesterday our Board of Trustees met to discuss in detail Action for M.E.’s position on a range of issues relating to the charity’s work and its future strategy.As part of this, the…
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