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One week left to share your experience of PIP or ESA

October 30, 2017

"It has been a distressing time for me. By the time I was at tribunal, I was given a five-year award due to the severe impact all of this has had on my health."This is the experience…
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How can we best support children with M.E.?

October 20, 2017

How can we best design support services that reduce isolation, increase knowledge and awareness, and ensure equality of care for children with M.E. and their families?Designed and led…
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Applying for PIP and ESA: share your story

October 13, 2017

Our Head of Communications and Policy will be speaking on BBC Radio 4’s You and Yours programme today about the challenges facing people with M.E. who apply for welfare benefits, specifically…
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Your chance to take part in PIP and ESA inquiry

October 04, 2017

“During my assessment my M.E. was hardly acknowledged or really talked about. The assessor was a nurse and I felt they had little knowledge of my condition or the difficulties it presents…
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Add your voice to those calling for action on PIP

September 14, 2017

“I was too unwell to appeal, knowing that the extra stress would cause further relapse.”That’s the experience of just one person with M.E. who inputted into the Disability Benefits…
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Senior social workers to learn about impact of M.E.

September 12, 2017

The impact of M.E. will be brought to the attention of senior social workers today when Action for M.E.’s report into families facing false accusations is shared with them at a conference…
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M.E. in Northern Ireland: our NVTV interview

August 17, 2017

Less than half of UK NHS boards commission a specialist service for M.E., and Northern Ireland has no provision at all, leaving thousands of desperately ill people unable to access…
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New report: specialist NHS services for M.E. in the UK

July 25, 2017

A new report by Action for M.E. into specialist services has confirmed that vast numbers of people with M.E. do not have any specialist services in their local area.The report, titled…
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Highlighting the need for greater understanding of M.E.

February 17, 2017

Action for M.E. has submitted its response to the Government’s consultation on work and disability, Improving lives: Work, Health and Disability Green Paper, representing the views…
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Take part in the Big Benefits Survey

February 07, 2017

The Disability Benefits Consortium (DBC) has just opened its Big Benefits Survey, which asks disabled people to share their experience of the benefits system. People with M.E. are encouraged…
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Work, health and disability survey: thank you!

January 23, 2017

We would like to say a huge thank you to everyone who participated in our Work, Health and Disability survey. The survey attracted a brilliant reaction, with more than 600 people responding…
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Action for M.E. responds to independent PIP review

September 16, 2016

Action for M.E. has responded to the second independent review of the Personal Independence Payment (PIP) assessment. We are hugely grateful to the more than 300 people with M.E. who…
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Do you claim PIP? Share your experience

August 04, 2016

The Department for Work and Pensions (DWP) has issued a call for evidence on the Personal Independence Payment (PIP) for its second independent review of the benefit.Action for M.E.…
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Minister Alistair Burt responds to question on M.E. and social care

July 05, 2016

Action for M.E. volunteer Catherine Hale attended a roundtable discussion yesterday where she questioned Alistair Burt, Minister for Social Care. The Independent Living Strategy Group,…
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Your chance to help shape the new Independent Living Fund for Scotland

June 27, 2016

People with M.E. and other disabilities living in Scotland are being asked what policies and criteria they would like the new Independent Living Fund for Scotland to include when it…
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Wellbeing, choice and control: what's your social care experience?

May 26, 2016

The Independent Living Strategy Group is asking people with M.E. to share their experiences of social care and support in order to present evidence to the Government.Baroness Jane Campbell,…
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Tell us about the impact of the 20m PIP rule

May 24, 2016

Minister for Disabled People Justin Tomlinson was presented with evidence last week, including the experiences of people with M.E., highlighting the impact of the 20 metre Personal…
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​Presenting evidence to Isle of Man government committee

May 13, 2016

Action for M.E. Chief Executive Sonya Chowdhury will give evidence at Tynwald, the parliament of the Isle of Man, this morning.She has been invited to do so by the Social Affairs Policy…
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