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April 07, 2021
On Thursday 15 April, from 6.00-6.45pm, the DecodeME Management Group will be hosting a live Q+A webinar on the DecodeME Facebook page. The webinar will focus primarily on the recruitment…
January 26, 2021
The opportunity to take part in an international research study looking at the impact of M.E./CFS on quality of life of patients and their family members is open until 31st March 2021.…
December 18, 2020
NICE has published its COVID-19 rapid guideline: managing the long-term effects of COVID-19. Developed jointly by NICE, the Scottish Intercollegiate Guidelines Network and the Royal…
October 22, 2020
“As much as it’s great for me to get these warm responses, I hope that other people out there in the world can get some support.” Two time Moto GP world champion Casey Stoner has…
August 11, 2020
The Dutch national health research agency ZonMw is developing a proposal to spend £23m exclusively on biomedical M.E./CFS research over the next 10 years. The proposal began back…
August 04, 2020
One of the two biomedical PhD students we are funding has published a paper looking at genetics and M.E. Action for M.E.-funded PhD student Joshua Dibble, M.E. patient Simon McGrath…
July 06, 2020
A research paper from the team at the UK M.E./CFS Biobank, who have visited nearly 100 people bed- or house-bound with M.E., offers their reflections on healthcare for those severely…
July 02, 2020
Our CEO Sonya Chowdhury spoke on BBC Points West today about the potential rise in M.E./CFS following Coronavirus, and the number of people who are experiencing problematic or delayed…
June 25, 2020
Sonya Chowdhury, our Chief Executive, reflects on the years of dedication and collaboration by so many, that have led to this week's launch of
June 22, 2020
Patients, scientists and advocates are celebrating £3.2m funding for DecodeME, the largest ever ME/CFS DNA study, announced today.As part of the ME/CFS Biomedical Partnership, Action…
June 18, 2020
The European Parliament has passed a motion with an overwhelming majority calling for more funds to research M.E.In a resolution adopted yesterday, with 676 votes in favour, four against…
June 11, 2020
There is a fantastic opportunity for people to join a steering group to support an exciting project which will put people with M.E. at the forefront of future research into the debilitating…
May 18, 2020
A paper has been published, reporting on an unsuccessful feasibility study of early intervention to prevent CFS in adults.It concludes: "A randomised controlled trial to test an early…
April 15, 2020
An exciting opportunity has opened up for people to join the steering group for the new Priority Setting Partnership (PSP) which is being run by Action for M.E. and the James Lind Alliance.This…
March 10, 2020
A new project, supported by three Government-backed research funders, has been launched to help ensure that the M.E. research priorities that matter most to the people affected by the…
February 20, 2020
What big research questions do people with M.E., their carers and clinicians want answered?You are invited to a free workshop on Tuesday 10 March to start a conversation about addressing…
February 11, 2020
“It’s shocking that so many people are living with this debilitating illness and there is so little attention on it," says Dr Sadie Whittaker. "I feel strongly that increasing recognition…
January 03, 2020
More than 1,500 people with M.E., carers, family members and friends have already shown their support for a potentially game-changing genetic study - but we need thousands more.You…
December 19, 2019
In November, the newly established M.E./CFS Biomedical Partnership met with Medical Research Council and the National Institute for Health Research to discuss an application for funding…
December 18, 2019
The UK CFS/ME Research Collaborative (CMRC)’s sixth conference will take place in Bristol, Tuesday 10 and Wednesday 11 March 2020. You can now view the conference’s draft programme…
November 28, 2019
SummaryOn Monday, the ME/CFS Biomedical Partnership met with Medical Research Council (MRC) and the National Institute for Health Research (NIHR) to discuss an application for funding…
November 07, 2019
Led by biomedical researchers and patient representatives, including Action for M.E. Chief Executive Sonya Chowdhury, a newly established group called the ME/CFS Biomedical Partnership…
October 24, 2019
This week is the Royal College of GPs annual conference. Along with other charity representatives, our Policy Officer Sam Bromiley will host a Forward ME information stand, with the…
August 13, 2019
We are pleased to announce that Action for M.E. will be working with Oxford Brookes University to gather the experiences of children and young people with M.E. to develop a new guideline…
May 02, 2019
We're undertaking a five-year follow up to our last major survey of people living with M.E. in the UK, asking children and adults about their experiences of health, education, employment,…
April 03, 2019
We are pleased to be able to let you see the results of the recent survey conducted on behalf of Forward ME. All the raw data was analysed and inserted into a comprehensive report by…
February 15, 2019
Supporting you to stay informed about M.E. research, we aim to publish regular round-ups of papers published in peer-reviewed journals. Please note this is not an exhaustive list…
January 28, 2019
Minutes from January’s meeting of the Board of the UK CFS/M.E. Collaborative (CMRC) are now available to read. This gives updates on:Medical Research Council Strategy Board – a paper…
January 24, 2019
Carol Monaghan MP, Member of the UK Parliament for Glasgow North West, will lead a House of Commons debate on M.E. at 2pm today.This follows her Westminster Hall debate in June on research…
January 17, 2019
Carol Monaghan MP, Member of the UK Parliament for Glasgow North West, has confirmed that the Backbench Business Committee has agreed to a debate on M.E. taking place next Thursday.Following…
January 11, 2019
Forward M.E. has launched a survey to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT).The National Institute of Health and Care…
November 07, 2018
Trigger warning: this post features content of a sensitive nature regarding suicide. Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for…
October 25, 2018
Our updated comment can be found at the bottom of the article. The final version of the National Institute for Clinical Excellence (NICE)’s scope for its revised guideline on M.E./CFS…
October 09, 2018
Update: Applications for this have now closed. The Patient Advisory Group (PAG) to the UK CFS/M.E. Research Collaborative (CMRC) is recruiting a number of new adult members, based in…
October 05, 2018
On 19 and 20 September, the UK CFS/M.E. Research Collaborative (CMRC) welcomed people living with M.E., scientists, clinicians and industry experts to its fifth annual science conference…
August 22, 2018
This year’s annual UK CFS/M.E. Research Collaborative (CMRC) conference is taking place at the Future Inn, Bristol on Wednesday 19 and Thursday 20 September. This will be the first…
June 27, 2018
The full programme for this year’s UK CFS/M.E. Research Collaborative conference has now been announced.Conference speakers already confirmed include: Prof Cathie Sudlow, UK Biobank…
June 19, 2018
The ME Association will be funding up to six student awards of up to £350 to help cover the cost of travel, accommodation and the registration fee for students.Applications can be made…
June 07, 2018
Latest research: standing unaided, glucose and muscle cells and moreSupporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer…
June 07, 2018
A debate on M.E. treatment and research will be held in Westminster Hall on 21 June and we need your MP to attend!The debate comes after Carol Monaghan MP, Member of the UK Parliament…
June 04, 2018
Action for M.E. is delighted to announce its latest PhD studentship in biomedical M.E. research.Following our rigorous Research Funding Assessment Process, our Board of Trustees has…
May 24, 2018
Action for M.E. and the Scottish Government’s Chief Scientist’s Office are delighted to announce our jointly funded PhD studentship in biomedical M.E. research.Prof Chris Ponting, University…
May 03, 2018
Registration is now open for the 2018 UK CFS/M.E. Research Collaborative conference, which takes place in Bristol on Wednesday 19 and Thursday 20 September.Registration fees for people…
March 29, 2018
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
March 22, 2018
A study published today in the journal BMC Psychology, which examines data from the PACE trial and evaluates the conclusions from the trial as a whole, raises "serious concerns about…
March 06, 2018
A new, ambitious, scientific strategy has been developed by the UK CFS/ME Research Collaborative (CMRC), of which Action for M.E. is an active Executive Board member.The Executive Board…
February 22, 2018
Action for M.E. and the Scottish Government Chief Scientist Office are pleased to launch a joint funding call for Scottish Universities to host a PhD studentship in biomedical research…
January 25, 2018
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
January 11, 2018
A paediatric M.E. research study that Action for M.E. was supporting has found alternative funding, allowing us to use the money to support children and families with M.E. in other…
January 08, 2018
Thanks to a dedicated team of volunteers, a full report of the fourth annual UK CFS/M.E. Research Collaborative (CMRC) science annual conference, held in Bristol in September 2017,…
November 06, 2017
Research co-funded by Action for M.E., showing that cellular bioenergetics is impaired in patients with M.E., has been published in the journal PlosOne.Also co-funded by the Medical…
October 24, 2017
Supporting you to stay informed about M.E. research, we publish regular round-ups from Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
October 10, 2017
Action for M.E. is inviting PhD proposals for high-quality biomedical research pilot projects that will address the biology of Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome…
September 28, 2017
M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today.The figures account for healthcare costs, disability-related welfare payments,…
September 20, 2017
Results of a trial published today show that a small cohort of young people with mild or moderate M.E. report improvement in their symptoms after undergoing the Lightning Process in…
September 13, 2017
"Any physician will tell you that you learn a lot more from talking to patients than you do from reading any kind of text book."These are the words of leading US M.E. researcher Dr…
August 31, 2017
If you're hoping to attend the 2017 UK CFS/M.E. Research Collaborative (CMRC) conference featuring Prof Jose Montoya on Wednesday 13 and Thursday 14 September, it's worth bearing in…
August 25, 2017
Supporting you to stay informed about M.E. research, we publish regular round-ups by Action for M.E. volunteer and pharmacist Emily Beardall, covering a selection of papers published…
August 16, 2017
Experts in neurovirology and orthostatic intolerance take the lead at the fourth annual UK CFS/ME Research Collaborative (CMRC) conference next month, which will be filmed by Action…
August 07, 2017
A research symposium that includes the latest research by Stanford Genome Technology Center Director Ronald W. Davis will be livestreamed on Saturday, August 12.The symposium, which…
August 01, 2017
New research from Stanford University has found that blood biomarkers may help diagnose Chronic Fatigue Syndrome.The inflammation biomarkers could also give new clues to what causes…
July 18, 2017
Following requests from people with M.E., this year’s CFS/ME Research Collaborative (CMRC) conference is now open to people with M.E., carers and M.E. advocates on both days.Taking…
June 23, 2017
Some people with M.E. report that using a guided self-help version of graded exercise therapy (GET) helps improve symptoms, says a study published yesterday in the Lancet.Two hundred…
May 18, 2017
Each month, Action for M.E. volunteer and Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
May 16, 2017
In April, our Board of Trustees met to discuss Action for M.E.’s position on a range of key issues relating to our work.This includes a number of serious concerns raised by our supporters…
May 03, 2017
The journal PLOS ONE has issued an Expression of Concern about the PACE trial paper it published in 2012.“Several readers have raised concerns about some of the analyses reported in…
April 11, 2017
A potential biomarker, and the effect of exercise on the brains and bodies of people with M.E., are the highlights of our monthly research round-up for April. Researched and written…
March 30, 2017
The Scientific Team and the Patient Advisory Group for MEGA have confirmed that data will be collected from those most severely affected by M.E., preferably through home visits.The…
December 21, 2016
Selected presentations from this year's UK CFS/M.E. Research Collaborative (CMRC) conference are now available to read in a draft overview - a full report is expected soon. The CMRC…
December 05, 2016
It’s shocking that research funding for M.E. is still well below the level we see for other illnesses. It still feels as though some people do not see M.E. as a debilitating, serious…
November 30, 2016
A new website for the M.E./CFS Epidemiology and Genomics Alliance (MEGA) is now live, with lots of information about this potentially game-changing research project and the scientists…
November 23, 2016
Launching our new five-year strategy at our 2016 conference and AGM last week, we set out how we plan to improve the lives of people with M.E., inspire action at all levels, and invest…
November 22, 2016
In response to questions asked by our supporters and others affected by M.E., we would like to clarify our position on the M.E./CFS Epidemiology and Genomics Alliance (MEGA) research…
November 18, 2016
Launching our new five-year strategy at our Collaborating for change conference today, Action for M.E. asks how we can work better together to improve the lives of people with M.E.…
November 09, 2016
Bringing together M.E. advocates and charity representatives from six countries, the M.E./CFS International Alliance has written jointly to the National Institutes of Health, protesting…
November 03, 2016
The change.org site for the MEGA research project has been taken down while a new website dedicated to the project is being developed. This is following feedback that the Change.org…
November 02, 2016
The University of Bristol has announced the launch of a new clinical trial, in which more than 700 children and young people with M.E. will take part. The trial will investigate whether FITNET-NHS…
October 31, 2016
Prof Hugh Perry, Professor of Experimental Neuropathology, University of Southampton, and Chair of the MRC’s Neuroscience and Mental Health Board, has blogged and answered questions…
October 19, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
September 29, 2016
Research into M.E./CFS represents less than 1% of all active grants given by UK mainstream funding agencies, highlights a new report launched at today's UK CFS/M.E. Research Collaborative…
September 28, 2016
Please add your voice to support a significant biomedical research project to investigate the biology of M.E.Launched at today's UK CFS/M.E. Research Collaborative conference, the M.E./CFS…
September 27, 2016
Tomorrow marks the first day of the third annual CMRC conference, which will be held on Wednesday 28 and Thursday 29 September 2016 at the Novotel, Newcastle Airport.Our plan is to…
September 23, 2016
Working with statistics professors from the University of California and Columbia University, M.E. patient Alem Matthees has published his preliminary analysis of the anonymised PACE…
September 13, 2016
Queen Mary University of London (QMUL) announced on Friday that it has released anonymised data from the PACE trial to a patient with M.E. who requested it under the Freedom of Information…
September 02, 2016
Findings of research facilitated by the Open Medicine Foundation could be set to rock the world of medicine, writes Action for M.E. Volunteer Pharmacist Emily Beardall.Published online…
August 31, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
August 15, 2016
The Neurological Alliance, of which Action for M.E. is a member, have published their report Neurology and primary care: Improving the transition from primary care for people with neurological…
August 03, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
July 20, 2016
The Government has responded to a petition asking it to fund more research into M.E./CFS by saying that research into the illness is currently a priority area for the Medical Research…
July 12, 2016
Two Newcastle University research studies funded by Action for M.E. have concluded, having investigated immune responses and muscle dysfunction in people with M.E.Each research team…
June 27, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
June 08, 2016
Prof Ron Davis presented new findings from his big data study on severe M.E. at last week’s Invest in ME research conference, reports #MEAction.“Davis’s preliminary data show serious…
June 01, 2016
Each month, Action for M.E. Volunteer Pharmacist Emily Beardall explains some of the recently published research studies on M.E.Please note this is not an exhaustive list – we have…
May 23, 2016
M.E. was highlighted as a field that could benefit from world-class facilities as the University of Birmingham’s new £8million Phenome Centre at its official launch today.Clare Ogden,…
May 16, 2016
A new alliance of researchers, the M.E./CFS Epidemiology and Genomics Alliance (MEGA), has come together to advance M.E. research.Last year's UK CFS/M.E. Research Collaborative (CMRC)…
May 13, 2016
Action for M.E. is delighted to announce that we are funding two new research studies totalling £42,000, made possible by donations to our Clare Francis Research Fund and match-funding…
May 12, 2016
Action for M.E.’s Head of Communications and Policy, Clare Ogden, will join scientists, doctors and patients at the London School of Hygiene and Tropical Medicine (LSHTM) this evening…
February 21, 2016
Our Chair of the Board of Trustees, Alan Cook, has written to the Records and Information Compliance Manager at Queen Mary University of London to support the release of data related…
February 12, 2016
Yesterday our Board of Trustees met to discuss in detail Action for M.E.’s position on a range of issues relating to the charity’s work and its future strategy.As part of this, the…
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