October 24, 2019
This week is the Royal College of GPs annual conference. Along with other charity representatives, our Policy Officer Sam Bromiley will host a Forward ME information stand, with the aim of talking to as many GPs at the event as possible.
Throughout the conference, we will be sharing results from patient surveys to show GPs some of the major issues faced by people with M.E./CFS.
Patient surveys by Forward ME, Action for M.E. and #MEAction have shown that only a small number of young people and adults are obtaining a diagnosis within the NICE recommended timeframe. As well as this, these surveys have all shown that the current NICE treatment recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) for mildly and moderately affected patients have a worsening effect on the symptoms of a large percentage of people with M.E./CFS.
During the conference, we will advise GPs on how they can best help people with M.E./CFS, using a handout created by Dr Nina Muirhead, Action for M.E., #MEAction, the ME Association and ME Research UK, with information on post-exertional malaise, our serious concerns about GET and CBT, and the importance of rest, pacing and medication for individual symptoms.
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