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M.E. Genetics Research Symposium

August 04, 2022

Registration is now open.

Earlier this month we shared an exciting save the date.

We now have the date of Wednesday 14th September for our M.E. Genetics Research Symposium.

It will be held at the University of Edinburgh with the option to join us online or in person. We will host the event alongside the MRC Human Genetics Unit at the University of Edinburgh. This event will feature a mixture of presentations and workshops.

Workshops will include:

What would a 10-year programme of ME/CFS genetics research and follow-up studies look like? How can we drive it forward?

How can we forge collaborative links with researchers who are not currently active in M.E./CFS research ?How do we ensure PPI is at the heart of future genetics research?


PROGRAMME - S1.14 South Seminar Room

09.45 Registration

10.00 The Centre of Excellence vision, Prof Chris Ponting, Group Leader, MRC Human Genetics Unit, University of Edinburgh

10.10 The Power of Patient and Public Involvement (PPI): Sian Leary and Andy Devereux-Cooke, DecodeME PPI

10.30 Title TBC: Marte Viken, Researcher, Oslo University Hospital

11.10 BREAK (refreshments will be provided for people attending in person)

11.30 Post-exertional malaise as a Chronic Ischaemia-Reperfusion injury in Long COVID and ME/CFS resulting from fibrin amyloid micro clots: Prof Douglas Kell, Research Chair in Systems Biology, University of Liverpool

12.10 Dr Kenny Baillie, Snr Clinical Research Fellow in Anaesthesia & Critical Care, University of Edinburgh

12.50 Title TBC: Steve Gardner, CEO, PrecisionLife Ltd

13.30 LUNCH (lunch will be provided for people attending in person)

14.30 Workshops:

15.30 Plenary - feedback from workshops: Sonya Chowdhury, CEO, Action for M.E.

16.00 Close

15.30 Plenary - feedback from workshops: Sonya Chowdhury, CEO, Action for M.E.

16.00 Close


Register your interest via Eventbrite now: http://ow.ly/I2Rz50KbtKF