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More than 1,000 survey responses: add yours now

February 25, 2021

More than 1,000 people have so far completed a survey which researchers from the University of Cardiff hope will help better inform healthcare workers about the needs of families and loved ones of people with M.E.

The researchers, in collaboration with Dr Nina Muirhead who herself is living with M.E., are asking for even more families to get involved. She says:

“The greater the reach of this survey the more we can improve international understanding of how M.E./CFS impacts patients and their family members."

The survey, which is open until Wednesday 31 March 2021, is a short and simple online survey designed to be accessible to people aged 18 and over, including those severely affected by M.E.

Anyone interested in participating should follow the instructions below:

  • There are two questionnaires in the survey, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. People with M.E./CFS piloting the survey found each questionnaire took about 5 minutes to complete.
  • If you are accessing the survey for the first time please use this link above.
  • If you have started the study but lost the link to return please email the research team to be given your unique access code (please note this may take a few days).
  • If you have already participated, thank you for your participation. Please do not complete the survey more than once.



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