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Secretary of State supports the M.E./CFS PSP priorities

May 12, 2022

Over the past two years, we have been working with the M.E. community to find out the research priorities that matter most.

By asking those with lived experience, carers and clinicians working in the field, rather than researchers seeking funding, we have identified the Top 10+ priorities through the M.E./CFS Priority Setting Partnership (PSP).

The project was led by an independent group of people with M.E./CFS, carers and clinicians. It was facilitated by a non-profit making initiative, the James Lind Alliance (JLA). Our Chief Executive, Sonya Chowdhury, was the PSP Lead, accountable and responsible for the funding for the project which came from the National Institute for Health and Care Research, the Medical Research Council, and the Scottish Chief Scientist’s Office.

The report is supported by The Rt Hon, Sajid Javid, MP, Secretary of State for Health, and Social Care:

“I welcome the publication of this Priority Setting Partnership which sets out the Top 10+ research priorities for ME. The Government recognises that ME is an under-researched area and pledges to support research funders and the academic community to respond to this independent report.”

We thank all who took part in the surveys and workshops, the funders, Steering Group, James Lind Alliance and all who supported this project. You can find the Top 10+ priorities, and download or listen to the full project report on the dedicated M.E./CFS PSP website.

All questions submitted in course of reaching the top priorities, and those that were considered out of the scope of this study, are also available to view on the website.

And, there is still a way of getting involved. You can help to spread the news of the Top 10+ priorities by visiting the PSP website where you will find lots of free downloadable resources to help you to share the project results with others.

Don’t forget to follow our dedicated Twitter account for further updates.

Spread the word

Now we have the Top 10+ research priorities we need a concerted effort from those with the power to make research happen. You can help ensure they are aware of the Top 10+ and the importance of research into M.E.Use this tweet to share with your friends, family and followers.