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Shaping our future together: our call for a national strategy for M.E.

May 05, 2022

As we approach the World ME Day on 12 May, we launch Action for M.E.’s new five-year strategy, Shaping our future together. We also have a simple-text version.

Developed in partnership with people with M.E. of all ages, carers and professionals, it sets out four ambitious outcomes which we believe will help us end the decades of ignorance, injustice and neglect faced by people with M.E.

These outcomes are:

  1. The lives of people with M.E. are improved by effective access to the information, support and advocacy they need.
  2. The health of people with M.E. is improved via access to our holistic Healthcare Services, and the National Institute for Health and Care Excellence (NICE) guideline for M.E. is being effectively implemented across NHS services.
  3. Increased funding for high-quality research by more researchers leads to effective treatments for M.E.
  4. The UK Government establishes and leads a national strategy for M.E.

Sonya Chowdhury, CEO, Action for M.E. says:

We are calling for a national strategy for M.E. led by the UK Government with a clear implementation plan and significant investment. Action for M.E. alongside many from the M.E. community work hard behind the scenes to advocate for people with M.E. at all levels, and we hope that we will soon see a long overdue commitment to end the ignorance, injustice and neglect experienced by children and adults with M.E. We will not stop until this happens.

Thank you to everyone who has shared their insight and feedback on our strategy document, especially those with M.E. who advised on images and layout. We will share more detail about how we are planning to achieve these goals over the coming weeks and months.