July 25, 2017
A new report by Action for M.E. into specialist services has confirmed that vast numbers of people with M.E. do not have any specialist services in their local area.
The report, titled ‘Spotlight on specialist services: UK healthcare for people with M.E.’, also highlights that many services lack the capacity to make home visits, which restricts access to specialist services for the severely affected.
Furthermore, the report shows that:
You can view the data shared by your local Clinical Commissioning Group (CCG), Health Board or Health and Social Care Trust via our interactive maps showing:
Our findings are based on a Freedom of Information request we sent to CCGs, Health Boards and Health and Social Care Trusts in England, Wales, Scotland and Northern Ireland, requesting the data each held on M.E. prevalence, specialist health services, and secondary care referrals.
Based on these findings, Action for M.E. will take action to address the ignorance, injustice and neglect experienced by patients with M.E. We will:
If you are interested in working with us to take this forward, please contact our Policy Officer, Katie McMahon.