The ME/CFS Priority Setting Partnership completed a collaborative process in 2022 to identify research priority areas aimed guiding guide future research funding and help change the landscape of ME/CFS research in the UK and beyond.
By asking those with lived experience, carers and clinicians working in the field, rather than researchers seeking funding, we have identified the Top 10+ priorities through the ME/CFS Priority Setting Partnership (PSP).
Led by an independent group of people with ME/CFS, carers and clinicians, and facilitated by a non-profit making initiative, the James Lind Alliance.
Our Chief Executive, Sonya Chowdhury, was the PSP Lead, accountable and responsible for the funding for the project which came from the National Institute for Health Research, the Medical Research Council and the Scottish Chief Scientist’s Office.
You can find out what the Top 10+ priorities are, read, download or listen to the full project report and see what happens next on the dedicated ME/CFS PSP website.
All the questions submitted in course of reaching the top priorities, and those that were considered out of the scope of this study, are also available to view on the website.
