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Our research strategy

We're committed to driving increased research funding, more high-quality biomedical research, and bringing in more talented researchers into the ME field.

Our research aims

In our 2022 - 2027 strategy, Shaping our future together, we set out ambitions for increased research funding and more high-quality research, including:

  • an aim to deliver £2 million investment via our Breakthrough-ME research strategy
  • to co-delivery DecodeME, the world's largest genetic ME study, and seek to expand this research model to provide greater insight and research opportunities
  • to drive ME genetics research forward through a virtual Genetics Centre of Excellence and our involvement in collaborative in genetics-research project such as LOCOME
  • to address the shortage of ME researchers and investing in a Young Leaders programme
  • to ensure patient and public involvement (PPI) is at the heart of driving research forward
  • to work collaboratively to ensure progress in ME research is accelerated, including ensuring ME is included in long Covid research
  • to enhance our influencing and policy work by engaging with public funders and collaborating with stakeholders in the ME field to advocate for the UK to deliver strategic research funding for ME.

Clare Francis Research Fund

Our research-related activity is funded by our Clare Francis Research Fund, named for our President.

You can make a donation to directly support our research activities by:

  • visiting our Clare Francis Research Fund page on JustGiving
  • calling 0117 927 9551 and speaking to the Fundraising team
  • texting CFRF87 and your donation amount (£3, £5, or £10) to 70070 (texts to this number are free).

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By donating today, you'll help us fund more biomedical research into ME to develop diagnostic tests and treatments.
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Need to get in touch?

Call us on 0117 927 9551 or email infosupport@actionforme.org.uk to speak with a member of our Information & Support team. Or, find out how you can speak to another one of our friendly teams, such as our Fundraising or Marketing teams
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© 2025 Action for M.E. Charity registered in England and Wales: 1036419. Registered in Scotland: SC040452.
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