Below we offer details of other research projects whose researchers have asked us to promote recruitment. Each one gives contact information for the person you will need to speak to for more information.
There is also an extensive list of ME studies that are currently recruiting on the Science For ME forum.
Please note that by listing research projects here Action for ME is not endorsing them.
The studies on this page have all obtained ethics approval (if such approval is required) and all are being undertaken at a medical, research or academic institution.
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What is the experience of making online connections for people with ME and what is the relationship between these online connections and offline lives?
Research question and details: How are online connections formed, in what capacity do they exist, and how are they maintained? Why are online connections sought and what effect do they have on people with ME? What, if any, is the relationship between online connections and participants' offline lives?
What's involved: To take part, participants are asked to chat about their experiences in an informal online/phone interview lasting approximately 30-60 minutes. If you require interviews of shorter durations, multiple sessions can be accommodated, as too can any other reasonable adjustments. Interviews will take place via Zoom or Teams, with camera on or off, as you prefer, or over the phone.
Participant eligibility criteria: Participants must have a diagnosis of ME/CFS and have used the internet in the last 6 months to connect with other people.
Ethical approval: Ethical approval for this study has been granted by the ethics committee at the University of Birmingham faculty of medicine and applied health research.
Contact details: To take part in the survey, please visit contact Diane Shortland on DLS760@student.bham.ac.uk.
Deadline for taking part: recruitment will run in 8-week blocks and will continue into 2025 until enough suitable participants have been found.
Want to learn more about getting involved in research?
For more information about what getting involved in research and/or clinical trials might mean, please visit NHS Choices. You can find out about research participation opportunities on the NIHR's Be Part of Research website.
If you are someone with lived experience, such as someone with ME or a carer, and would like to share your views on the process and output of research (rather than being a research participant) you can also get involved through Public and Patient Involvement (PPI). You can find out about ME research-related PPI opportunities on the Science for ME forum.
Action for ME actively involves people with lived experience in its funded projects and through its Research Sub-Committee.
Any new Action for ME PPI opportunities will be listed here as they arise.
