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UK CFS/M.E. Collaborative

UK CFS/M.E. Research Collaborative

Since its inception in 2013, the UK CFS/M.E. Research Collaborative (CMRC) has successfully brought together significant numbers of researchers from across the UK and internationally with charities, mainstream funders and patients.

Aiming to drive interest and funding in CFS/ME research - which, as highlighted by the CMRC's 2016 M.E./CFS Research Funding report, represents less than 1% of all active grants given by UK mainstream funding agencies - the CMRC has held four successful conferences, initiated and supported new collaborations, worked with mainstream funders and secured interest from pharma/industry, and brought researchers in from outside of the field as well as partners from charities covering overlapping illnesses.

Following a meeting of its Executive Board in February 2018, the CMRC agreed on a new purpose, objectives and values, which replace its previous Charter. You can read an interview with Prof Chris Ponting, who took up the post of CMRC's Deputy Chair on 1 April 2018.

The CMRC's purpose is to promote the discovery of the biological mechanisms that underpin CFS/M.E., which, together with clinical observation, will drive the development of targeted new treatments for this highly underserved patient population.

Action for M.E. is an Executive Board member of the CMRC and, as part of our research strategy, plays an active part in supporting its work. If you have any questions about our work relating to the CMRC, please get in touch.

Patient Advisory Group seeks new members

The Patient Advisory Group (PAG) to the CMRC is recruiting a number of new adult members. To apply, you must be aged 18 or over, and based in the UK. Please read the role description and person specification in detail in the PAG application pack before applying. The closing date for applications is 5pm Wednesday 7 November 2018. Read more in our news story about this.

2018 annual science conference

The CMRC’s fifth annual science conference (view the programme) took place in Bristol in September 2018, with scientists, people with M.E., clinicians and industry professionals coming together to discuss research ambitions and bringing more collaboration into the field.

Our 2018 conference playlist of presentations is available now on the Action for M.E. YouTube channel (please note that, due to the presentation of unpublished data, some speakers decline to be filmed); a short written report of presentations was published on 5 December.

You can also watch presentations from last year's conference, and read our detailed 2017 conference report.

Join the CMRC

Membership of the CMRC is open to anyone with an interest in M.E. research, with Professional (£20 per annum), Student (£15 per annum) and Associate Membership (free) available.

All members agree to work within the values of the CMRC, and you can apply to join by downloading and completing the CMRC application form.

CMRC Board meetings

The Board of the CMRC meets four times a year to discuss the work of the CMRC and report on actions taken. Click on the links below to read minutes from the following meetings (please note all are draft minutes, before being approved at the next meeting):