The UK CFS/M.E. Research Collaborative (CMRC) aims to promote the highest quality of basic and applied evidenced based and peer reviewed research into CFS/M.E. Action for M.E. has been an Executive Board member of the CMRC since it was set up in 2013 (read its Charter, which was revised in August 2016). The CMRC brings together researchers, major funders and M.E. charities to:
Experts in neurovirology and orthostatic intolerance took the lead for the fourth annual UK CFS/M.E. Research Collaborative (CMRC) conference, which took place in Bristol in September. This year’s conference focused on the biology of M.E. and how researchers can work together collaboratively to further research it.
A full report will be available in due course, and in the meantime you can watch recordings of most presentations on Action for M.E.'s YouTube channel, including:
The third annual CMRC conference took place in September 2016 in Newcastle, with speakers including Dr David Patrick, University of British Columbia; Dr Zaher Nahle, Vice President for Research and Scientific Programs at Solve CFS/M.E; and Prof George Davey Smith, University of Bristol.
Read and/or download reports of
Announced at the 2015 CMRC conference, Chair Prof Stephen Holgate announced a Grand Challenge to initiate a national UK study that will collect samples from more than 12,000 men, women and children with M.E., plus healthy controls, and focus on phenotyping and subtyping data using statistical analysis, bringing in genomics and other areas. A Grand Challenge workshop was held in April 2016 in Bristol, resulting in the M.E./CFS Epidemiology and Genomics Alliance (MEGA). Visit the MEGA website to find out more - and read why about Action for M.E. is supporting this essential research project.
Launched at its 2016 conference in Newcastle, the CMRC's M.E./CFS Research Funding report highlights that research into M.E./CFS represents less than 1% of all active grants given by UK mainstream funding agencies. M.E./CFS has been a high priority for the Medical Research Council (MRC) for a long time, yet it receives very few high-quality applications in this area. Based on this report, and the scientific discussions at the conference, the MRC will review its M.E./CFS highlight notice, the mechanism by which researchers are alerted to areas that are a high priority for the MRC, with a view to encourage more applications.
Prof Stephen Holgate, Chair, UK CFS/M.E. Research Collaborative, says: “This report presents hard evidence of the chronic lack of research funding for M.E./CFS from major funding agencies. I am delighted that the MRC will now review its highlight notice as a result, and hope that the report proves to be a foundation for other mainstream funders to reassess their attitudes towards M.E./CFS and review their funding policies towards the illness.”
You can join the CMRC as a professional member (£20 per year or £15 a year for students*). This type of membership is open to all UK-based medical practitioners, all other health care professionals, researchers and charities involved in research or with an interest in M.E. research.
Being involved in research is defined as:
*Students in this category are defined as those doing research and registered for a further degree (PhD, doctorate, MSC).
Benefits of membership include:
Associate membership (free) is open to those interested in supporting the CMRC. Associate members are not expected to be actively involved in M.E. research but will want to support it.
Associate members are kept up to date with work stream progress and new initiatives, and are invited to take part in associate member sessions at the CMRC's annual conference.
To join the CMRC, please download an application form.
The Executive Board of the CMRC meets four times a year to discuss the work of the CMRC and report on actions taken. Click on the links below to read minutes from the following meetings (please note all are draft minutes, before being approved at the next meeting):
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