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UK CFS/M.E. Collaborative

UK CFS/M.E. Research Collaborative

The UK CFS/M.E. Research Collaborative (CMRC) aims to promote the highest quality of basic and applied evidenced based and peer reviewed research in to CFS/M.E.  Action for M.E. has been an Executive Board member of the CMRC since it was set up in 2013 (read its Charter). The CMRC brings together researchers, major funders and M.E. charities to:

  • provide a mechanism for M.E. charities, researchers and clinicians to work together in a coordinated and collaborative way
  • increase awareness of M.E. within the research community
  • highlight priorities for research funding to assist funders such as the Medical Research Council
  • aim to increase funding for M.E. research.

2016 CMRC conference

The third annual CMRC conference takes place Wednesday 28 and Thursday 29 September 2016 at the Novotel, Newcastle Airport. Speakers on the programme include:

  • Dr David Patrick, University of British Columbia, presenting on submaximal exercise testing in M.E. and other research areas in relation to the stratification of illnesses through work in public health
  • Dr Zaher Nahle, Vice President for Research and Scientific Programs at Solve CFS/M.E., presenting on the Solve CFS/M.E. Initiative biobank and other research programmes
  • Prof George Davey Smith, University of Bristol, presenting on the M.E./CFS Epidemiology & Genomics Alliance big data study

Livestreaming is taking place on each day - please check our social media for updates.

You can read and/or download reports from the 2015 conference in Newcastle the 2014 conference in Bristol.

The Grand Challenge

Announced at the 2015 CMRC conference, the Grand Challenge initiates a national UK study that will collect samples from more than 12,000 men, women and children with M.E., plus healthy controls to focus on phenotyping and subtyping data using statistical analysis, bringing in genomics and other areas. 

A Grand Challenge workshop was held in April 2016 in Bristol and the new M.E./CFS Epidemiology and Genomics Alliance (MEGA) has formed as a result. The MEGA report from the workshop set out its intentions and, at the 2016 CMRC conference, MEGA launched a website asking people to add their voice in support of the project. For it to have a high chance of success when it applies for funding, MEGA needs evidence that patients support MEGA – which is why adding your name in support is so important.

Join the CMRC

You can join the CMRC as a professional member (£20 per year or £15 a year for students*). This type of membership is open to all UK-based medical practitioners, all other health care professionals, researchers and charities involved in research or with an interest in M.E. research.

Being involved in research is defined as:

  • researchers - published peer reviewed papers within the last 2 years, or conducting research (PI, co-applicant or researcher) in peer reviewed studies.
  • health care professionals - supporting research through active involvement in peer reviewed projects. For example, Principal or Chief Investigator in a hospital recruiting patients in to a trial or study that has undergone peer review.
  • charities - not for profit organisations supporting research through involvement on steering groups/patient advisory groups on research projects that have undergone peer review or by funding M.E. research.

*Students in this category are defined as those doing research and registered for a further degree (PhD, doctorate, MSC).

Benefits of membership include:

  • being able to contribute to work streams designed to deliver the aims and objectives of the CMRC.
  • contributing to research strategy
  • being kept up to date with work stream progress and new initiatives.
  • reduced fees for attendance at the annual general meeting where work streams will present their progress in meeting objectives and researchers will be able to present research findings.

Associate membership (free) is open to those interested in supporting the CMRC. Associate members are not expected to be actively involved in M.E. research but will want to support it.

Associate members are kept up to date with work stream progress and new initiatives, and are invited to take part in associate member sessions at the CMRC's annual conference.

To join the CMRC, please download an application form.

Read meeting minutes

The Executive Board of the CMRC meets four times a year to discuss the work of the CMRC and report on actions taken. Click on the links below to read minutes from the following meetings: