Skip to content

2019 Big Survey: key results

Every five years, our Big Survey asks people with M.E. about their experiences of healthcare, symptom management and other support. We most recently did this in May 2019, consulting with more than 4,000 young people and adults over three months. This briefing combines three of our two-page explainers, with key survey findings on the impact of M.E., pacing and GET/CBT.

You may also like...

Living with ME, Young people and families
ME and higher education
Read more
Living with ME
What is ME?
Read more

Subscribe to our newsletter!

Join our newsletter mailing list for updates on our latest activities, news, and campaign information. Simply fill in the below form to receive regular updates from us.

Name
This field is for validation purposes and should be left unchanged.

Need to get in touch?

Call us on 0117 927 9551 or email infosupport@actionforme.org.uk to speak with a member of our Information & Support team. Or, find out how you can speak to another one of our friendly teams, such as our Fundraising or Marketing teams
Contact us
© 2025 Action for M.E. Charity registered in England and Wales: 1036419. Registered in Scotland: SC040452.
Fundraising Regulator badge with validation link

Supporting you

Getting the right information supports informed decision-making. If you’re newly diagnosed or looking for reliable information about ME, this is the section for you.

18 and under

Living with ME can be hard, especially for children and young people. If you're under the age of 18, this section is for you.

Support us

If you'd like to donate or fundraiser for us, or volunteer to support our work, you'll find what you need here.
Ways to support us
Supporting membership

Research & Campaigns

Find out how we're creating positive change for the future through our research and campaigning work.

News & events

Looking for recent updates on our work and from the wider field? You're in the right place.

About us

In this section, you can find all the information you need on our organisation, why we do what we do, and how to get in touch with us.
linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram