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Board of Trustees

Board of Trustees

Jonah Grunsell joined Action for M.E. as Chair of Board of Trustees in November 2016. Jonah succeeds Alan Cook CBE, who joined Action for M.E. in April 2010. Speaking about his appointment as Chair, Jonah said:

“By working together in proactive partnership and collaboration, and drawing on the incredible set of experience, skills and expertise of the Action for M.E. team along with the wider M.E. affected community, we can achieve our aims, deliver our strategy and, most importantly, make our vision of a world without M.E. a reality. I am passionately committed to doing everything I can to make that happen.”


Philip Marsden, our Treasurer, is a chartered accountant and spent many years at Arthur Andersen & Co and the private equity group 3i. He is now a director of a corporate finance advisory company and a non-executive director of two investment trusts. Philip first became aware of M.E. in 2003 when his son was diagnosed with the illness.


Chris Cundy, our Treasurer until 2015, brings considerable financial expertise, having previously been Executive Board Director of VT Group for 13 years and a chartered accountant with KPMG.


Ondine Upton has had M.E. for 20 years, and was previously Chair of our Board of Trustees. She is a fundraising consultant, working with not-for profit sector consultancy Action Planning, and previously worked in marketing and publicity for various publishers.


Consultant radiologist Jane Young and her son have both recovered from M.E. Jane says: “I am aware that the challenges of accessing care and benefits for those with M.E. are a continuing issue, I am determined to keep this a priority despite the difficult economic circumstances.”


Jane Logan is a senior lecturer in midwifery a Fellow of the NHS Improvement Faculty which works nationally to share learning and good practice. She was diagnosed with M.E. following a bout of viral myocarditis. 


Former Clinical Lead for M.E. for NHS Dumfries and Galloway, now retired, Dr Gregor Purdie co-authored the Scottish Good Practice Statement on M.E./CFS and has strong links with local M.E. support groups. Dr Purdie is also one of our Medical Advisers.


Jane Stacey had a career in social work and senior management within a local authority before moving to children's charity Barnardo's, where she was Deputy Chief Executive. She is particularly interested in supporting welfare rights work and the social policy issues that are linked to this.


Katherine Thomas became very ill with M.E. in 1999 but is now more mildly affected. She has worked for the Welsh Government since 2004, and represented Wales on Equality 2025, advising the UK Government on employment and welfare reform for disabled people. 


Charlie Stockford has lived with M.E. for more than 10 years. She runs a Sustainability Consultancy company, SustainIt, working to help corporate organisations improve their social, ethical and environmental performance. 


Sue Hardy, who has had M.E. for 16 years, before which she worked as a nurse and senior lecturer in nursing. She suffered a relapse in 2013, from which she is making a steady recovery. Now medically retired, she works six hours a week at a complementary therapy centre.


Gordon Berry, who received a diagnosis of M.E. after 25 years of illness. This led to him being provided with life-changing support. Today he runs a business troubleshooting consultancy, and has held charitable roles as a Trustee and Chair.


Matt Symonds has been appointed for one year by the Board. Matt was introduced to the charity when he attended the Speaker’s House reception at the end of June by our outgoing Chair, Alan Cook. Matt was keen to get involved after he heard about the impact of M.E. and the work the charity does to tackle this.