Information for ME Researchers offers information and advice for ME researchers about how to structure and adapt research projects to make them suitable for people with ME.
It builds on the experience of successful ME researchers covering a wide range of research methodologies and approaches.
Action for M.E. is grateful to have had the opportunity to contribute to this document, alongside Professor Chris Ponting from DecodeME, Dr Nicola Clague-Baker from Physios for ME and Caroline Kingdon from the UK Biobank for ME.
If you are researcher or someone keen to include the perspectives of people with lived experience in your work, this guide on involving people with ME also offers helpful advice:
It is produced by the World ME Alliance and available in multiple languages:
Involving People with ME – World ME Alliance.
You can also learn more about the UK standards for PPI and how to involve people with lived experience in research on the NIHR website:
NIHR PPI Resources for Applicants
