Skip to content

New survey: Help inform welfare benefits reform

16 April 2025


The UK government is proposing changes to welfare benefits that could have a serious impact on people living with ME and long Covid.

We have worked collaboratively with other organisations to develop a survey which will help us respond to the governments recent Pathways to Work: Reforming Benefits and Support to Get Britain Working Green Paper, highlighting the experiences of people with ME and long Covid, and the negative effective the proposed reforms will have on them.

If you receive PIP, UC or ESA benefits, or care for someone who does, we want to hear from you!

This survey has been created by Long Covid Support, ME Local Network, and ThereForME, in collaboration with the All-Party Parliamentary Groups (APPGs) on ME and long Covid.

It’s open to residents of England, Wales, and Northern Ireland. (Scotland has a separate system and will require a different survey.)

Your responses will support our advocacy to the government for benefits that better support people living with these conditions. No identifying information will be shared.

Thank you for helping ensure the voices of people with ME and long Covid are heard.

Click here to complete the survey.

This survey has been endorsed by a number of other organisations. To view the full list, please visit one of our social media channels.

You may also like...

Our response: Concessions & the passing of the welfare bill
Last night, the government’s welfare bill was passed by 335 votes to 260. As an organisation, we continued to oppose the bill...
Read more
New Research Project: PRIME – Building Infrastructure for Patients, Researchers and Industry for ME/CFS
We are excited to announce our new research project, PRIME, ‘Building Infrastructure for Patients, Researchers and Industry for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
Read more
Alison Hume MP joins Action for ME's Parliamentary Champions network
We are pleased to announce that Alison Hume MP as the latest member of our Parliamentary Champions network! Speaking on joining our...
Read more
Update from the Windsor Castle Research Event
On 3-4 March, Action for ME hosted a research event at Windsor Castle that bought together 27 international experts from different sectors....
Read more

Subscribe to our newsletter!

Join our newsletter mailing list for updates on our latest activities, news, and campaign information. Simply fill in the below form to receive regular updates from us.

Name
This field is for validation purposes and should be left unchanged.

Need to get in touch?

Call us on 0117 927 9551 or email infosupport@actionforme.org.uk to speak with a member of our Information & Support team. Or, find out how you can speak to another one of our friendly teams, such as our Fundraising or Marketing teams
Contact us
© 2025 Action for ME Charity registered in England and Wales: 1036419. Registered in Scotland: SC040452. Registered Companies House: 02906840
Fundraising Regulator badge with validation link

Supporting you

Getting the right information supports informed decision-making. If you’re newly diagnosed or looking for reliable information about ME, this is the section for you.

18 and under

Living with ME can be hard, especially for children and young people. If you're under the age of 18, this section is for you.

Help change lives

Your support helps us support even more people affected by ME through our Support and Healthcare Services.
Donate now

Support us

If you'd like to donate or fundraiser for us, or volunteer to support our work, you'll find what you need here.
Ways to support us
Supporting membership

Help change lives

Help us create positive change for people affected by ME.
Donate now

Research & Campaigns

Find out how we're creating positive change for the future through our research and campaigning work.

Receive our newsletter

Sign up to receive our quarterly newsletter, 'Keep me updated'.
Subscribe now

News & events

Looking for recent updates on our work and from the wider field? You're in the right place.

Help change lives

Our Healthcare Services provide support for people living with ME, who can't access this support elsewhere.
Donate now

About us

In this section, you can find all the information you need on our organisation, why we do what we do, and how to get in touch with us.
linkedin facebook pinterest youtube rss twitter instagram facebook-blank rss-blank linkedin-blank pinterest youtube twitter instagram