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World ME Day 2026: Why medical education matters
12 May 2026
Today, on World ME Day 2026, we are joining organisations around the world to call for better medical education on ME/CFS. ME...
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News
Major funding secured for Sequence ME & Long Covid, a DecodeMe project
11 May 2026
We are thrilled to announce that our landmark research study, Sequence ME & Long Covid, has received major funding (£4.75m) from the UK government, signalling a transformative...
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News
ME in parliament: Recent written questions
7 May 2026
Written questions tabled by Greg Stafford MP, Jo Platt MP and Tom Morrison MP in March/April 2026 have been answered. Greg, Jo...
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News
Have your say: Timms Review announces wider engagement programme for disabled people
6 May 2026
The UK Government’s independent review of Personal Independence Payment (PIP) has announced a wider programme of evidence-gathering and public engagement. The Timms...
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News
Montell Douglas is presenting our BBC Lifeline Appeal!
22 April 2026
We're delighted to announce Montell Douglas as our BBC Lifeline Presenter! Montell will feature in our 9-minute video, alongside our CEO, Sonya...
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News
New study finds age peaks in ME onset
25 March 2026
We are pleased to have funded new research from Dr Audrey Ryback at the University of Edinburgh, co-produced with Simon McGrath, exploring...
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News
NHS England releases updated severe ME/CFS e-learning module, open to the public
18 March 2026
Updated NHS learning module on severe ME/CFS now available The NHS has launched an updated version of its third online learning module:...
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Events, News
PRIME Research Project Second Workshop
18 March 2026
Long Covid and ME/CFS share many symptoms, but do they share the same biology?  Join our second PRIME Workshop to explore the similarities and distinctions...
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News
New Minister for Public Health and Prevention appointed
4 March 2026
Following Ashley Dalton MP's recent resignation from Ministerial duties, Sharon Hodgson MP has been appointed as Parliamentary Under-Secretary of State for Public...
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News
Sequence ME & Long Covid launches
20 February 2026
Action for ME, the Schmidt Initiative for Long COVID, and the Complex Disorders Alliance (CODA) announce the launch of Sequence ME &...
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News
Tom Morrison MP joins our Parliamentary Champions network
19 February 2026
We're delighted to announce Tom Morrison MP as our newest Parliamentary Champion! Speaking on the announcement, Tom said: "I'm pleased to become...
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News
Lee Barron MP joins our Parliamentary Champions network
30 January 2026
We're delighted to announce Lee Barron MP as our newest Parliamentary Champion! Speaking on the announcement, Lee said: "As the Member of...
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