CPD module to assist health professionals

February 18, 2021

“Imagine feeling viral, exhausted, unwell and in pain, confined to your bed or house, lying in a dark room for years or even decades. The world has been shocked by the damage that viruses…


​Scotland consultation on Adult Disability Payment

January 14, 2021

The Scottish Government is consulting on the draft regulations for Adult Disability Payment (ADP), a new Scottish benefit that will replace Personal Independence Payment (PIP). Delivered…


M.E. petition to Scottish Government now closed

August 26, 2020

The Scottish Government’s Petitions Committee has ended its work on ME Action’s petition, supported by Action for M.E., calling for more investment research, training and education…


PhD student Josh publishes genetics and M.E. review

August 04, 2020

One of the two biomedical PhD students we are funding has published a paper looking at genetics and M.E. Action for M.E.-funded PhD student Joshua Dibble, M.E. patient Simon McGrath…


Avril: learning self management from people with M.E.

May 21, 2020

Avril, our Project Officer in Scotland, shares her thoughts on self-management in a new blog for Health and Social Care Alliance Scotland. She says:"Normally I work on the Mentor M.E.…


Scottish Health Council survey of M.E. in Scotland

February 14, 2020

The Scottish Health Council (SHC) has launched a survey to gather the views and lived experience of people with M.E./CFS in Scotland. The survey was commissioned in response to questions…


Meet M.E. drop-in in Fife on 12 March: all welcome

February 12, 2020

We asked Zara, who attended one of our Meet M.E. drop-in events, what she loved about the session. She said:"Meeting other people with M.E... Knowing that people are interested in supporting…


Neurological care and support in Scotland update

February 03, 2020

Last month the Scottish Government launched the Neurological care and support: Framework for action 2020-2025. This framework sets out their vision for driving improvement in the care…


Michael: "Mentor M.E. meant I was less isolated."

January 28, 2020

Michael has M.E. and lives in Stirling, Scotland.“Before, I found it difficult to accept my illness. Other people didn’t believe I was ill, as I looked OK to them. This made me not…


​Scottish Petitions Committee discussion on M.E./CFS

May 30, 2019

Earlier this morning the Scottish Petitions Committee responded to a petition put forward to them asking for them to "review treatment of people with M.E." "I was very struck by the…


Meet M.E. drop-in day, Inverness: book your free place

May 09, 2019

Meet M.E. is a free, informal, drop-in event for people with M.E., carers, family and friends, hosted by Action for M.E., M.E. Highlands and Islands Network and The Oxygen Works, on…


May is M.E. Awareness Month

May 01, 2019

For M.E. Awareness Month 2019, we are asking professionals, planners and policy-makers: "Are you missing M.E.?"Many children and adults with M.E. tell us they feel missed out, and left…


Educate M.E. reflection and development meeting

March 05, 2019

Action for M.E. hosted a reflection and development meeting on 23 February as part of Educate M.E. - a one year project set up to develop and deliver awareness raising sessions in secondary…


​Educate M.E. awareness raising session South Ayrshire

February 08, 2019

Teachers in South Ayrshire have been learning about the impact of M.E. and how to support young people with the condition, thanks to Action for M.E.’s Educate M.E. project in Scotland.…


Scottish Parliament discussion of M.E. during Petitions Committee

January 30, 2019

Thursday 24 January was a busy day for the M.E. community with debates being held in both UK and Scottish Parliament. The Scottish Petitions Committee was attended by Scotland’s Chief…


Parliamentary debates on M.E. on 24 January

January 25, 2019

"It’s actually quite remarkable to consider how little is being sent on research, it's something like 0.02% of all active grants given by mainstream funding agencies going to support…


Scottish government launches National Action Plan

January 16, 2019

The Scottish Government has published a draft National Action Plan on Neurological Conditions. It sets out the vision of improving diagnosis, treatment and care of people with neurological…


Aged 13 to 23 and have M.E./CFS in Scotland?

December 17, 2018

Are you aged 13 to 23 and living with M.E./CFS in Scotland? We want to hear from you! Schools can struggle to get it right for children and young people with M.E. Although M.E. is the…


A​ction for M.E. and Forward M.E. at GP conference

September 25, 2018

Forward M.E. charities, including Action for M.E., will host an exhibition stand and workshop at next month’s Royal College of General Practitioners (RCGP) conference in Glasgow – please…


Scottish Liberal Democrats adopt new policy on M.E.

September 10, 2018

The Scottish Liberal Democrats voted to support a motion on M.E. at their party conference on Saturday, calling for a number of actions, including the removal of graded exercise therapy…


​Raising awareness of M.E. in a school near you

August 22, 2018

Would your secondary school benefit from an awareness- raising session? M.E. is the main cause of long-term absence from schools. Yet there is very little awareness and understanding…


Scottish Parliament event recording now online

June 05, 2018

Audio recordings of a special event at the Scottish Parliament hosted by Gail Ross MSP and supported by Action for M.E. are now available to listen to online.The event recording has…


Ask your MP to show support for M.E. Awareness Week

May 10, 2018

An Early Day Motion has been tabled in the UK parliament in recognition of M.E. Awareness Week, with a similar motion tabled in the Scottish Parliament too - see below.Early Day Motions…


​Patients and professionals show MSPs: This is M.E.

May 09, 2018

The chronic, neurological condition myalgic encephalomyelitis (M.E.) affects more people in Scotland than MS and Parkinson’s combined – but doctors receive almost no training on the…


New PhD funding for biomedical M.E. research

February 22, 2018

Action for M.E. and the Scottish Government Chief Scientist Office are pleased to launch a joint funding call for Scottish Universities to host a PhD studentship in biomedical research…


New webinar for health professionals coming this month

January 04, 2018

The latest webinar in Action for M.E.’s series for health professionals will go live on Tuesday 16 January from 8pm to 9pm.M.E./CFS: Management principles for health professionals will…


Webinar recording now online

December 11, 2017

A recording and the slides from our latest educational webinar for primary healthcare professionals are now available to view in the Health and Care Professionals section of our website.‘Meeting…


Webinar for healthcare professionals next Thursday

November 21, 2017

There's just over a week to go until our new webinar aimed at educating healthcare professionals about M.E. launches online.Meeting the needs of people with M.E./CFS – essential facts…


New webinar for healthcare professionals coming soon

November 09, 2017

A new webinar aimed at educating healthcare professionals about M.E. will be launched later this month.Meeting the needs of people with M.E./CFS – essential facts and practical tips…


Using your experience of M.E. to support others

October 02, 2017

Do you live in Fife, Edinburgh or Lothians? Could you use your experience of M.E. to support someone else living with the condition?We are seeking volunteers to get involved in our Mentor…


Action for M.E. calls for improved Scot health service

August 09, 2017

Action for M.E. has called for improvements to Scottish health services in response to an inquiry into the culture of the NHS in Scotland.In our response to the Health and Sport Committee’s…


Help shape our work in Scotland: event in August

July 25, 2017

If you have experience of living with M.E. or are a professional with an interest in the illness living in Scotland, we'd like to invite you to attend a meeting to help shape our Scottish…


​M.E. healthcare in Scotland: share your views

July 21, 2017

What treatment or management approaches for M.E. have you been offered by healthcare professionals? Did they listen to your views and treat you with respect?Action for M.E. is asking…


New project to lead change launched in Scotland

May 09, 2017

Action for M.E. has launched a new 12-month, Scottish Government-funded project as part of M.E. Awareness Month that will allow us to lead change in Scotland by reaching out to health…


New project to improve health and social care in Scotland

March 24, 2017

Action for M.E. is launching a new project in Scotland to work with health and social care professionals.Inform M.E. Scotland is a 12-month, Scottish Government-funded project that…


Chance for people with M.E. to shape Scottish benefits

December 02, 2016

The Scottish Government are looking for people who have applied for social security benefits to become part of a focus group that will help them design and test a new social security…


Improve, inspire and invest: our strategy for change

November 18, 2016

Launching our new five-year strategy at our Collaborating for change conference today, Action for M.E. asks how we can work better together to improve the lives of people with M.E.…


Action for M.E. respond to Scottish Government consultation

November 01, 2016

Informed by the experiences of people with M.E., Action for M.E. has responded to a consultation on social security in Scotland, outlining how welfare benefits provision can be improved…


Got experience of M.E.? Take part in our new project

October 27, 2016

If you have experience of M.E. and would like to use your experiences to help support others in a positive and constructive way, then Action for M.E. has an opportunity for you.We are…


Control of welfare benefits in Scotland: have your say

September 07, 2016

The Scottish Government is consulting with people across Scotland about how best to use the new social security powers devolved to it by the Scotland Act 2016. These powers include…


New peer-mentoring support network seeks volunteers

September 05, 2016

Mentor M.E. is Action for M.E.’s new volunteer peer-mentor support network for people affected by M.E. in Scotland, funded by the Health and Social Care Alliance Scotland (the Alliance)…


New self-advocacy guide for people with M.E. in Scotland

June 01, 2016

More than 100,000 Scots live with a long-term neurological condition, including M.E. Like many other groups with physical health problems, they have no statutory right to an independent…


Alliance funds our new five-year project

March 23, 2016

Action for M.E. is delighted to announce that the Health and Social Care Alliance Scotland (ALLIANCE) has agreed to fund our five-year peer-mentoring project in full.Our project is one…