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February 18, 2021
“Imagine feeling viral, exhausted, unwell and in pain, confined to your bed or house, lying in a dark room for years or even decades. The world has been shocked by the damage that viruses…
January 14, 2021
The Scottish Government is consulting on the draft regulations for Adult Disability Payment (ADP), a new Scottish benefit that will replace Personal Independence Payment (PIP). Delivered…
August 26, 2020
The Scottish Government’s Petitions Committee has ended its work on ME Action’s petition, supported by Action for M.E., calling for more investment research, training and education…
August 04, 2020
One of the two biomedical PhD students we are funding has published a paper looking at genetics and M.E. Action for M.E.-funded PhD student Joshua Dibble, M.E. patient Simon McGrath…
May 21, 2020
Avril, our Project Officer in Scotland, shares her thoughts on self-management in a new blog for Health and Social Care Alliance Scotland. She says:"Normally I work on the Mentor M.E.…
February 14, 2020
The Scottish Health Council (SHC) has launched a survey to gather the views and lived experience of people with M.E./CFS in Scotland. The survey was commissioned in response to questions…
February 12, 2020
We asked Zara, who attended one of our Meet M.E. drop-in events, what she loved about the session. She said:"Meeting other people with M.E... Knowing that people are interested in supporting…
February 03, 2020
Last month the Scottish Government launched the Neurological care and support: Framework for action 2020-2025. This framework sets out their vision for driving improvement in the care…
January 28, 2020
Michael has M.E. and lives in Stirling, Scotland.“Before, I found it difficult to accept my illness. Other people didn’t believe I was ill, as I looked OK to them. This made me not…
May 30, 2019
Earlier this morning the Scottish Petitions Committee responded to a petition put forward to them asking for them to "review treatment of people with M.E." "I was very struck by the…
May 09, 2019
Meet M.E. is a free, informal, drop-in event for people with M.E., carers, family and friends, hosted by Action for M.E., M.E. Highlands and Islands Network and The Oxygen Works, on…
May 01, 2019
For M.E. Awareness Month 2019, we are asking professionals, planners and policy-makers: "Are you missing M.E.?"Many children and adults with M.E. tell us they feel missed out, and left…
March 05, 2019
Action for M.E. hosted a reflection and development meeting on 23 February as part of Educate M.E. - a one year project set up to develop and deliver awareness raising sessions in secondary…
February 08, 2019
Teachers in South Ayrshire have been learning about the impact of M.E. and how to support young people with the condition, thanks to Action for M.E.’s Educate M.E. project in Scotland.…
January 30, 2019
Thursday 24 January was a busy day for the M.E. community with debates being held in both UK and Scottish Parliament. The Scottish Petitions Committee was attended by Scotland’s Chief…
January 25, 2019
"It’s actually quite remarkable to consider how little is being sent on research, it's something like 0.02% of all active grants given by mainstream funding agencies going to support…
January 16, 2019
The Scottish Government has published a draft National Action Plan on Neurological Conditions. It sets out the vision of improving diagnosis, treatment and care of people with neurological…
December 17, 2018
Are you aged 13 to 23 and living with M.E./CFS in Scotland? We want to hear from you! Schools can struggle to get it right for children and young people with M.E. Although M.E. is the…
September 25, 2018
Forward M.E. charities, including Action for M.E., will host an exhibition stand and workshop at next month’s Royal College of General Practitioners (RCGP) conference in Glasgow – please…
September 10, 2018
The Scottish Liberal Democrats voted to support a motion on M.E. at their party conference on Saturday, calling for a number of actions, including the removal of graded exercise therapy…
August 22, 2018
Would your secondary school benefit from an awareness- raising session? M.E. is the main cause of long-term absence from schools. Yet there is very little awareness and understanding…
June 05, 2018
Audio recordings of a special event at the Scottish Parliament hosted by Gail Ross MSP and supported by Action for M.E. are now available to listen to online.The event recording has…
May 10, 2018
An Early Day Motion has been tabled in the UK parliament in recognition of M.E. Awareness Week, with a similar motion tabled in the Scottish Parliament too - see below.Early Day Motions…
May 09, 2018
The chronic, neurological condition myalgic encephalomyelitis (M.E.) affects more people in Scotland than MS and Parkinson’s combined – but doctors receive almost no training on the…
February 22, 2018
Action for M.E. and the Scottish Government Chief Scientist Office are pleased to launch a joint funding call for Scottish Universities to host a PhD studentship in biomedical research…
January 04, 2018
The latest webinar in Action for M.E.’s series for health professionals will go live on Tuesday 16 January from 8pm to 9pm.M.E./CFS: Management principles for health professionals will…
December 11, 2017
A recording and the slides from our latest educational webinar for primary healthcare professionals are now available to view in the Health and Care Professionals section of our website.‘Meeting…
November 21, 2017
There's just over a week to go until our new webinar aimed at educating healthcare professionals about M.E. launches online.Meeting the needs of people with M.E./CFS – essential facts…
November 09, 2017
A new webinar aimed at educating healthcare professionals about M.E. will be launched later this month.Meeting the needs of people with M.E./CFS – essential facts and practical tips…
October 02, 2017
Do you live in Fife, Edinburgh or Lothians? Could you use your experience of M.E. to support someone else living with the condition?We are seeking volunteers to get involved in our Mentor…
August 09, 2017
Action for M.E. has called for improvements to Scottish health services in response to an inquiry into the culture of the NHS in Scotland.In our response to the Health and Sport Committee’s…
July 25, 2017
If you have experience of living with M.E. or are a professional with an interest in the illness living in Scotland, we'd like to invite you to attend a meeting to help shape our Scottish…
July 21, 2017
What treatment or management approaches for M.E. have you been offered by healthcare professionals? Did they listen to your views and treat you with respect?Action for M.E. is asking…
May 09, 2017
Action for M.E. has launched a new 12-month, Scottish Government-funded project as part of M.E. Awareness Month that will allow us to lead change in Scotland by reaching out to health…
March 24, 2017
Action for M.E. is launching a new project in Scotland to work with health and social care professionals.Inform M.E. Scotland is a 12-month, Scottish Government-funded project that…
December 02, 2016
The Scottish Government are looking for people who have applied for social security benefits to become part of a focus group that will help them design and test a new social security…
November 18, 2016
Launching our new five-year strategy at our Collaborating for change conference today, Action for M.E. asks how we can work better together to improve the lives of people with M.E.…
November 01, 2016
Informed by the experiences of people with M.E., Action for M.E. has responded to a consultation on social security in Scotland, outlining how welfare benefits provision can be improved…
October 27, 2016
If you have experience of M.E. and would like to use your experiences to help support others in a positive and constructive way, then Action for M.E. has an opportunity for you.We are…
September 07, 2016
The Scottish Government is consulting with people across Scotland about how best to use the new social security powers devolved to it by the Scotland Act 2016. These powers include…
September 05, 2016
Mentor M.E. is Action for M.E.’s new volunteer peer-mentor support network for people affected by M.E. in Scotland, funded by the Health and Social Care Alliance Scotland (the Alliance)…
June 01, 2016
More than 100,000 Scots live with a long-term neurological condition, including M.E. Like many other groups with physical health problems, they have no statutory right to an independent…
March 23, 2016
Action for M.E. is delighted to announce that the Health and Social Care Alliance Scotland (ALLIANCE) has agreed to fund our five-year peer-mentoring project in full.Our project is one…
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